Column of Hope

Chiari and Syringomyelia Research Foundation - Working toward a life without pain.

Our Mission: Searching for better understanding, treatments, and cures for Chiari malformation, syringomyelia, neuropathic pain, spinal cord injury and related conditions.

SAVE THE DATE! CSF Flow at Niagara Falls: Chiari, Syringomyelia and EDS Conference

June 26-28, 2019 for researchers, physicians, and physician extendersJune 29, 2019 AM for patients and caregivers

Hyatt Regency Buffalo, Buffalo, NY

Organizers:Marcus Stoodley, PhD, FRACS – The Australian School of Advanced Medicine, Macquarie University, Sydney, AustraliaLynne Bilston, PhD, FAHMS – Senior Principle Research Scientist at NeuRA, Sydney, Australia

This meeting will provide a forum for discussion of the latest research on mechanisms, diagnosis and treatment of patients with Chiari... Read More

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A normal brain and spinal cord.
Chiari malformation and Syringomyelia.

What is Chiari Malformation?

Chiari I malformation is when the back of the skull is abnormally small. When this happens there is not enough room for the brain to fit in the skull properly and part of the brain is forced out of the skull into the spinal cord. Learn more

What is Syringomyelia?

Syringomyelia is a neurological disorder in which a cyst or cavity forms in the spinal cord. The cyst is called a syrinx and can expand and elongate over time, destroying the spinal cord. Learn more

What is Neuropathic Pain?

Neuropathic pain occurs when there is a malfunction in the part of the nervous system that tells the brain that tissue is injured. While there may be no injury to the tissue where the pain exists, the nervous system tells the brain that there is damage, causing pain. Learn more

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