Column of Hope

Chiari and Syringomyelia Research Foundation - Working toward a life without pain.

Our Mission: Searching for better understanding, treatments, and cures for Chiari malformation, syringomyelia, neuropathic pain, spinal cord injury and related conditions.

Chiari, Syringomyelia & EDS Patient & Caregiver Session, June 29, 2019

Thank you to all who have preregistered for the June 29, 2019 Patient & Caregiver Session, hosted by Column of Hope in Buffalo, NY. We are compiling a top ten list of questions for the presenters. Suggestions will be greatly appreciated as we rank the top ten topics that the Chiari, syringomyelia and EDS communities are interested in.

For those who still want to preregister for the event that features Dr. Marcus Stoodley from Sydney, Australia, Dr. John Oró from Aurora, CO, Dr. Renée Reynolds from Buffalo, NY, and Lynne Bilston,... Read More

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A normal brain and spinal cord.
Chiari malformation and Syringomyelia.

What is Chiari Malformation?

Chiari I malformation is when the back of the skull is abnormally small. When this happens there is not enough room for the brain to fit in the skull properly and part of the brain is forced out of the skull into the spinal cord. Learn more

What is Syringomyelia?

Syringomyelia is a neurological disorder in which a cyst or cavity forms in the spinal cord. The cyst is called a syrinx and can expand and elongate over time, destroying the spinal cord. Learn more

What is Neuropathic Pain?

Neuropathic pain occurs when there is a malfunction in the part of the nervous system that tells the brain that tissue is injured. While there may be no injury to the tissue where the pain exists, the nervous system tells the brain that there is damage, causing pain. Learn more

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